Helpful Links

Links and Additional Resources

Below are some trusted sources where you can learn more. The Meaning and Hope Institute is not responsible for the content of other pages. Links from other organizations can change and may no longer work effectively. Please let us know at meaningandhope@duetaz.org if you find a link that no longer works. 

Table of Contents

What is Dementia, its Common Signs, and Possible Causes?


How do I know if it’s dementia?
https://www.nia.nih.gov/health/what-is-dementia

What are common signs of dementia?
https://www.alz.org/alzheimers-dementia/10_signs

What are common types of dementia?
https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia

What is the difference between Alzheimer’s disease versus dementia?
https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia
Does a specific diagnosis matter?https://www.mayoclinic.org/diseases-conditions/dementia/symptoms-causes/syc-20352013

Questions around Diagnosis

How do I get my person diagnosed? https://stanfordhealthcare.org/medical-conditions/brain-and-nerves/dementia/diagnosis.html
Finding a doctor: Generalist v. Specialist?https://www.alz.org/alzheimers-dementia/diagnosis/visiting-your-doctor
What if my person refuses to see a doctor?
How can I convince my person to go to the doctor/get a diagnosis?
https://www.alzheimersblog.org/2018/04/27/convince-loved-memory-loss-doctor/
Now what after the diagnosis?https://www.nia.nih.gov/health/next-steps-after-alzheimers-diagnosis
Who should I tell about the diagnosis? What should I say?https://www.alz.org/national/documents/topicsheet_telldiagnosis.pdf
How do I educate family and friends about the diagnosis?https://www.nia.nih.gov/health/helping-family-and-friends-understand-alzheimers-disease
My person is in denial about the diagnosis, how can I convince them something is wrong?https://www.alzheimers.org.uk/get-support/help-dementia-care/understanding-denial-lack-of-insight

https://www.dementiacarers.ca/when-the-person-with-dementia-doesnt-know-they-have-limitations-anosognosia/

Questions around Caregiver Role(s)

What is a caregiver? Care partner v. Caregiver?https://www.caregiver.org/resource/caregiving-101-being-caregiver/
When can I expect to be a caregiver? https://www.helpguide.org/articles/alzheimers-dementia-aging/tips-for-alzheimers-caregivers.htm
How am I supposed to take care of myself when I don’t have time?
https://www.caregiver.org/resource/taking-care-you-self-care-family-caregivers/
I no longer feel like the spouse/adult child; I feel like a parent. What do I do?https://alzheimer.ca/en/help-support/i-have-friend-or-family-member-who-lives-dementia/understanding-how-your-relationship
Our relationship has changed. How do I come to terms with the change?https://www.alz.org/help-support/caregiving/caregiver-health/relationship-changes

Community-based, Home and Long Term Care

What are care options?
https://www.nia.nih.gov/health/getting-help-alzheimers-caregiving
How do I find care?https://www.alzheimers.gov/life-with-dementia/find-local-services
How do I choose the best residential option for care?
https://www.alz.org/media/documents/alzheimers-dementia-choosing-residential-care-ts.pdf

https://www.nia.nih.gov/health/finding-long-term-care-person-alzheimers

Medical Decisions and Hospital Care

How is dementia (Alzheimer’s disease) treated?https://www.nia.nih.gov/health/how-alzheimers-disease-treated
Should the person be taking medications for dementia (Alzheimer’s disease)?https://memory.ucsf.edu/treatments-stays/medications-dementia
How do the drugs help manage the symptoms?https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers/art-20048103
Is the medication really working? https://consultqd.clevelandclinic.org/alzheimer-dementia-starting-stopping-drug-therapy/ 
How to make sure my person gets the best care in the hospital?https://www.nia.nih.gov/health/going-hospital-tips-dementia-caregivers

Breathing, Meditation, and Mindfulness

Listen to Mindfulness Exerciseshttps://hov.org/our-care/mindfulness/mindfulness-practices/
Relaxation Exerciseshttps://www.caregiver.org/resource/caregiver-relaxation-exercises-series-english

Organizations and Government Resources to Visit

National Institute on Aginghttps://www.nia.nih.gov/health/alzheimers-and-dementia
National Institute on Aging Alzheimer’s Disease Education Referral Centerhttps://www.nia.nih.gov/health/alzheimers-and-dementia/about-adear-center
Alzheimer’s Associationhttps://alz.org
Alzheimer’s Foundation of Americahttps://alzfdn.org/
Family Caregiver Alliancehttps://www.caregiver.org/
Administration for Community Livinghttps://eldercare.acl.gov

The information on this on this page is for educational purposes. For individualized medical guidance, consult your physician.