Helpful Links
Links and Additional Resources
Below are some trusted sources where you can learn more. The Meaning and Hope Institute is not responsible for the content of other pages. Links from other organizations can change and may no longer work effectively. Please let us know at meaningandhope@duetaz.org if you find a link that no longer works.
Table of Contents
What is Dementia, its Common Signs, and Possible Causes?
How do I know if it’s dementia? | https://www.nia.nih.gov/health/what-is-dementia |
What are common signs of dementia? | https://www.alz.org/alzheimers-dementia/10_signs |
What are common types of dementia? | https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia |
What is the difference between Alzheimer’s disease versus dementia? | https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia |
| Does a specific diagnosis matter? | https://www.mayoclinic.org/diseases-conditions/dementia/symptoms-causes/syc-20352013 |
Questions around Diagnosis
Questions around Caregiver Role(s)
| What is a caregiver? Care partner v. Caregiver? | https://www.caregiver.org/resource/caregiving-101-being-caregiver/ |
| When can I expect to be a caregiver? | https://www.helpguide.org/articles/alzheimers-dementia-aging/tips-for-alzheimers-caregivers.htm |
| How am I supposed to take care of myself when I don’t have time? | https://www.caregiver.org/resource/taking-care-you-self-care-family-caregivers/ |
| I no longer feel like the spouse/adult child; I feel like a parent. What do I do? | https://alzheimer.ca/en/help-support/i-have-friend-or-family-member-who-lives-dementia/understanding-how-your-relationship |
| Our relationship has changed. How do I come to terms with the change? | https://www.alz.org/help-support/caregiving/caregiver-health/relationship-changes |
Important Discussions
| When is it time to stop driving? | https://www.nia.nih.gov/health/safety/driving-safety-and-alzheimers-disease#stop |
| What if the person refuses? | https://www.caregiver.org/resource/dementia-driving/ |
| When is it no longer safe to live alone? | https://www.alz.org/help-support/i-have-alz/know-what-to-expect/if_you_live_alone https://www.nia.nih.gov/health/tips-living-alone-early-stage-dementia |
Care Decisions
| How do I get the person to accept care? | https://www.alzheimers.org.uk/blog/how-offer-help-someone-dementia-who-doesnt-want-it |
| What if the person is resistance to care? | https://www.alz.org/media/cacentral/dementia-care-41-dealing-with-resistance-to-care.pdf |
| How can I advocate for the best care for my person? | https://order.nia.nih.gov/sites/default/files/2019-03/Caring_for_a_person_with_AD_508_0.pdf |
Community-based, Home and Long Term Care
| What are care options? | https://www.nia.nih.gov/health/getting-help-alzheimers-caregiving |
| How do I find care? | https://www.alzheimers.gov/life-with-dementia/find-local-services |
| How do I choose the best residential option for care? | https://www.alz.org/media/documents/alzheimers-dementia-choosing-residential-care-ts.pdf https://www.nia.nih.gov/health/finding-long-term-care-person-alzheimers |
End of Life Care
| How do I know it is time for palliative or hospice care? | https://www.alz.org/help-support/caregiving/care-options/hospice-care https://alzheimer.ca/en/help-support/im-caring-person-living-dementia/end-life-care |
Legal & Financial Planning
| How can I get paid as a family caregiver? | https://www.usa.gov/disability-caregiver (All States) https://azcaregiver.org/service/how-to-be-paid-as-a-family-caregiver/ (Arizona Specific) |
| Questions about family leave? Lost wages? Or Financial Issues | https://www.caregiver.org/resource/what-every-caregiver-needs-know-about-money/ |
| How can I pay for care? | https://www.nia.nih.gov/health/next-steps-after-alzheimers-diagnosis |
| What kind of legal/financial planning do I need to complete? | https://www.nia.nih.gov/health/legal-and-financial-planning-people-alzheimersplanning/planning-ahead-for-legal-matters https://www.alz.org/help-support/caregiving/financial-legal-planning |
| Do I need to see an elder law attorney? | https://www.alz.org/help-support/caregiving/financial-legal- |
| When is a guardianship/conservatorship needed? | https://www.alz.org/help-support/caregiving/financial-legal-planning/legal-documents |
Medical Decisions and Hospital Care
| How is dementia (Alzheimer’s disease) treated? | https://www.nia.nih.gov/health/how-alzheimers-disease-treated |
| Should the person be taking medications for dementia (Alzheimer’s disease)? | https://memory.ucsf.edu/treatments-stays/medications-dementia |
| How do the drugs help manage the symptoms? | https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers/art-20048103 |
| Is the medication really working? | https://consultqd.clevelandclinic.org/alzheimer-dementia-starting-stopping-drug-therapy/ |
| How to make sure my person gets the best care in the hospital? | https://www.nia.nih.gov/health/going-hospital-tips-dementia-caregivers |
Breathing, Meditation, and Mindfulness
| Listen to Mindfulness Exercises | https://hov.org/our-care/mindfulness/mindfulness-practices/ |
| Relaxation Exercises | https://www.caregiver.org/resource/caregiver-relaxation-exercises-series-english |
Organizations and Government Resources to Visit
| National Institute on Aging | https://www.nia.nih.gov/health/alzheimers-and-dementia |
| National Institute on Aging Alzheimer’s Disease Education Referral Center | https://www.nia.nih.gov/health/alzheimers-and-dementia/about-adear-center |
| Alzheimer’s Association | https://alz.org |
| Alzheimer’s Foundation of America | https://alzfdn.org/ |
| Family Caregiver Alliance | https://www.caregiver.org/ |
| Administration for Community Living | https://eldercare.acl.gov |
The information on this page is for educational purposes. For individualized medical guidance, consult your physician.